'12 - 24' Explaining Ehlers-Danlos Syndrome
Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective tissue disorder which can be very disabling. Individuals with hEDS can experience a wide variety of seemingly unconnected symptoms like joint hypermobility, muscle and bone pain, easy bruising, and associated problems such as gut disorders and a rapid heart beat.
There are no drugs that target the connective tissue abnormality. Current treatments include medications to reduce symptoms, and physiotherapy for muscle and joint pain. Good nutrition is essential for connective tissue repair and general healing. Identifying specific nutrients needed for connective tissue function is very important. We are urgently trying to raise £320,000 to research the effects of changes to diet on the symptoms of hypermobile EDS (hEDS).
This planned research will be conducted by Professor Qasim Aziz and Lisa Jamieson at the Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine. This intervention has the potential to improve the quality of life of patients with hEDS, through simple, inexpensive but effective dietary measures, whilst also reducing costs for the National Health Service.
The '12 - 24' film was directed by Jonah David Klein. Creative Director Ceri Teasdale. Produced by David Teasdale.
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