My Dravet Story - Paige
Dravet syndrome is a rare and severely disabling type of epilepsy presenting in infancy, sometimes called a catastrophic epilepsy. The latest research shows it affects approximately 1 in 19,000 people.
There is no cure for Dravet syndrome. Treatment focuses on controlling or minimising seizures in order to minimise their impact on development and reduce injuries. Anti-epileptic drugs are used, but these are not always effective in people with Dravet syndrome. Comprehensive testing and support is required for the multiple challenges that people with Dravet syndrome and their families face, which include co-morbidities, disability and learning difficulties.
An estimated 10-20 percent of Dravet syndrome patients pass away before reaching adulthood. The average age of death is about 8 years. The majority of these deaths are due to SUDEP (sudden unexpected death in epilepsy patients) and status epilepticus.
This film, was produced by Red Goat Productions for Dravet Syndrome UK and launched at the Charity’s Fundraising Gala and later shown at the International Dravet Conference 2018. The aim of this film was to show the daily reality of living with Dravet Syndrome through the eyes of Sam Slocombe and her daughter, Paige.
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