The Charity Film Awards
  • Audience

Our family: living with a rare condition


Although there are more than 6000 rare diseases, having one isn’t rare. People with rare diseases often have to wait years for a diagnosis, have difficulty accessing the treatment and care they need and can feel alone because they don’t know anyone else affected by the same condition as them.

Rare Disease UK is a campaign run by Genetic Alliance UK and it aims to ensure that everyone living with a rare disease in the UK has access to the right care and treatment, no matter where they live.

This video was produces for Rare Disease Day 2018, to raise awareness of the difficulties patients and families face in trying to get a diagnosis, expert help and coordinated care – so that no one is left behind because they have a rare disease.

More videos from Genetic Alliance UK

You need to login to vote for your favourite videos.

Register

If you don’t have an account, please register using the form below.

Why are we asking you to register to vote?

This helps us to stop voting abuse and also enables us to communicate the short-list and winners to everyone who voted later on. We will not pass this information on to anyone else.

Login

If you have an account, please login using the form below or click here if you have forgotten your password.

Supported by

Promote - Donate - Celebrate

Increased exposure for charity video content

Donations made directly to good causes throughout the campaign

Celebrating the success of film in fundraising