Why I Chose to Donate my Daughter's Brain

In 2017, five-year-old Olivia was diagnosed with a DIPG (Diffuse Intrinsic Pontine Glioma) brain tumour. Sadly, after bravely battling the disease she passed away just before her 6th birthday.

In this video Olivia's mum, Clare, talks openly about why she and her family decided to donate Olivia's brain to research.

We filmed this video with Clare just six weeks after Olivia passed away. Clare was remarkably honest and brave to talk about brain donation when her grief was still so raw to help us with our objective of empowering health professionals to broach the option of brain donation with more people.

Clare's video was shown to an audience of healthcare professionals at The Brain Tumour Charity's Nurse and Allied Health Care Professional Study Day in 2018. Following its screening, many health care professionals told our team that they would start having these difficult conversations with their patients. The video was a huge success.

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